NHS Tees Valley CCG is carrying out a twelve-week period of patient/public engagement (17 May – 6 August 2021) to understand the views of those who have supported a loved one with a long-term condition or cancer during the end stages of their life.
The purpose of the listening exercise is to look at how services provided to people who are in the last months of their life, known as end of life and palliative care services are currently delivered and what can be done to improve them so they are patient centred, offering individuals and their families access to collaborative, co-ordinated care.
This work is part of a pilot in the Tees Valley area (Middlesbrough, Redcar and Cleveland, Hartlepool, Stockton-on-Tees and Darlington) by NHS Tees Valley CCG to develop a co-produced strategy for Palliative and End of Life Care (PEoLC) alongside local partners, patients, parent carers and service providers that will guide a transformational programme.
How to get involved
Please complete this online survey.
https://www.surveymonkey.co.uk/r/TVEoL
Note: Please be aware that this survey is specifically looking for viewpoints of adult end of life experiences; for children and young peoples services, we will be running a separate survey in due course.
If you need a paper version please download the survey below and post to;
Judith McGuinness
Communication and Engagement
North of England Commissioning Support
John Snow House,
Durham DH1 3YG
The survey will run for eight weeks from 17 May until 9 July 2021, we will then analyse the responses to develop themes for workshops and co-production as well as a series of one-one interviews.
We are seeking to understand the views of those who have supported a loved one with a long-term condition or cancer during the end stages of their life (in the last two years). We appreciate that this may be a very difficult time for you and that discussions around death and dying can be uncomfortable, however if you feel that you would like to and are able to contribute, we would appreciate your input into this work. If you would like to share your experiences of End of Life and Palliative Care Services in a one-to one interview please e-mail NECSU.engagement@nhs.net or call Judith McGuinness on 07785601944.
The patient/stakeholder feedback will be independently analysed and a report will be produced which will be made public via the CCG website later this year.
Supporting information
For any additional information about the End of Life, Palliative Care review please contact:
Name: Beth Roberts
E-mail: bethany.roberts3@nhs.net
Tel: 07825 020426